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feat: enhance resource management by adding entity categories and subtypes for better classification; update resources and sitemap for new organ, body, and tissue donation features; modify yourselftoscience.pdf file
1 parent 0e44c59 commit 45d0fa1

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-5286
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‎package-lock.json‎

Lines changed: 8409 additions & 5142 deletions
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‎public/resources.csv‎

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Original file line numberDiff line numberDiff line change
@@ -30,4 +30,6 @@ penn-medicine-donate-your-data,"Donate Your Data for Health","Penn Medicine",htt
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hra-research-summaries,"Research Summaries","NHS Health Research Authority",https://www.hra.nhs.uk/planning-and-improving-research/application-summaries/research-summaries/,"Health data",donation,"United Kingdom","GB","",""
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cochrane-central-register-of-controlled-trials,"Cochrane Central Register of Controlled Trials (CENTRAL)","Cochrane Library",https://www.cochranelibrary.com/central,"Clinical trials",mixed,"","","",""
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german-clinical-trials-register,"German Clinical Trials Register (DRKS)","DRKS",https://drks.de/,"Clinical trials",mixed,"Germany","DE","",""
33-
health-canada-clinical-trials-database,"Health Canada's Clinical Trials Database","Health Canada",https://www.canada.ca/en/health-canada/services/drugs-health-products/drug-products/health-canada-clinical-trials-database.html,"Clinical trials",mixed,"Canada","CA","",""
33+
health-canada-clinical-trials-database,"Health Canada's Clinical Trials Database","Health Canada",https://www.canada.ca/en/health-canada/services/drugs-health-products/drug-products/health-canada-clinical-trials-database.html,"Clinical trials",mixed,"Canada","CA","",""
34+
aatb-accredited-bank-search,"AATB Accredited Bank Search","American Association of Tissue Banks (AATB)",https://www.aatb.org/accredited-bank-search,"Tissue, Body, Organ, Placenta, Eggs, Sperm, Embryos",mixed,"United States","US","",""
35+
organdonor-gov,"OrganDonor.gov","U.S. Department of Health & Human Services",https://www.organdonor.gov/sign-up,"Organ, Tissue",donation,"United States","US","",""

‎public/resources.json‎

Lines changed: 127 additions & 16 deletions
Original file line numberDiff line numberDiff line change
@@ -12,6 +12,8 @@
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"Location history"
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],
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"compensationType": "donation",
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"entityCategory": "Non-Profit",
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"entitySubType": "Research Foundation",
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"citations": [
1618
{
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"title": "Greshake Tzovaras, B., Angrist, M., Arvai, K., Dulaney, M., Estrada-Galiñanes, V., Gunderson, B., ... & Price Ball, M. (2019). Open Humans: A platform for participant-centered research and personal data exploration. GigaScience, 8(6), giz076.",
@@ -29,6 +31,8 @@
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"Wearable data"
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],
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"compensationType": "donation",
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"entityCategory": "Academic",
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"entitySubType": "Academic",
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"citations": [
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{
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"title": "Shandhi, M.M.H., Cho, P.J., Roghanizad, A.R. et al. A method for intelligent allocation of diagnostic testing by leveraging data from commercial wearable devices: a case study on COVID-19. npj Digit. Med. 5, 130 (2022)",
@@ -44,7 +48,9 @@
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"dataTypes": [
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"Health data"
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],
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"compensationType": "donation"
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"compensationType": "donation",
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"entityCategory": "Commercial",
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"entitySubType": "Commercial"
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},
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{
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"id": "apple-research",
@@ -60,7 +66,9 @@
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"countryCodes": [
6167
"US"
6268
],
63-
"compensationType": "donation"
69+
"compensationType": "donation",
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"entityCategory": "Commercial",
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"entitySubType": "Commercial"
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},
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{
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"id": "all-of-us",
@@ -77,7 +85,9 @@
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"countryCodes": [
7886
"US"
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],
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"compensationType": "mixed"
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"compensationType": "mixed",
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"entityCategory": "Government",
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"entitySubType": "Research Agency"
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},
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{
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"id": "fitbit-research",
@@ -92,7 +102,9 @@
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"dataTypes": [
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"Wearable data (Fitbit only)"
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],
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"compensationType": "donation"
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"compensationType": "donation",
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"entityCategory": "Commercial",
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"entitySubType": "Commercial"
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},
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{
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"id": "spark-for-autism",
@@ -109,7 +121,9 @@
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"countryCodes": [
110122
"US"
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],
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"compensationType": "mixed"
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"compensationType": "mixed",
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"entityCategory": "Non-Profit",
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"entitySubType": "Research Foundation"
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},
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{
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"id": "ubc-body-donation",
@@ -125,7 +139,9 @@
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"countryCodes": [
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"CA"
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],
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"compensationType": "donation"
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"compensationType": "donation",
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"entityCategory": "Academic",
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"entitySubType": "Academic"
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},
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{
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"id": "cambridge-body-tissue-donation",
@@ -142,7 +158,9 @@
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"countryCodes": [
143159
"GB"
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],
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"compensationType": "donation"
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"compensationType": "donation",
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"entityCategory": "Academic",
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"entitySubType": "Academic"
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},
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{
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"id": "italy-body-tissue-donation",
@@ -159,7 +177,9 @@
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"countryCodes": [
160178
"IT"
161179
],
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"compensationType": "donation"
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"compensationType": "donation",
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"entityCategory": "Government",
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"entitySubType": "Public Health Service"
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},
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{
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"id": "france-body-donation",
@@ -175,7 +195,9 @@
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"countryCodes": [
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"FR"
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],
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"compensationType": "donation"
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"compensationType": "donation",
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"entityCategory": "Government",
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"entitySubType": "Public Health Service"
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},
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{
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"id": "uk-gamete-donation",
@@ -193,7 +215,9 @@
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"countryCodes": [
194216
"GB"
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],
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"compensationType": "donation"
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"compensationType": "donation",
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"entityCategory": "Government",
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"entitySubType": "Regulatory Agency"
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},
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{
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"id": "clinicaltrials-gov",
@@ -205,6 +229,8 @@
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],
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"compensationType": "mixed",
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"resourceType": "registry",
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"entityCategory": "Government",
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"entitySubType": "Research Agency",
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"description": "A comprehensive registry and results database of publicly and privately supported clinical studies conducted around the world. Managed by the U.S. National Library of Medicine."
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},
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{
@@ -216,7 +242,9 @@
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"Clinical trials"
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],
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"compensationType": "mixed",
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"resourceType": "registry"
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"resourceType": "registry",
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"entityCategory": "Intergovernmental",
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"entitySubType": "Intergovernmental Organization"
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},
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{
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"id": "eu-clinical-trials-register",
@@ -240,6 +268,8 @@
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],
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"compensationType": "mixed",
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"resourceType": "registry",
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"entityCategory": "Government",
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"entitySubType": "Regulatory Agency",
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"description": "The European Union's official database for clinical trials conducted in the EU and EEA."
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},
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{
@@ -258,6 +288,8 @@
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],
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"compensationType": "mixed",
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"resourceType": "registry",
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"entityCategory": "Commercial",
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"entitySubType": "Commercial",
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"citations": [
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{
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"title": "Figueira-Gonçalves, J. M., Callejas-González, F. J., Golpe, R., Máiz-Carro, L., Marín-Oto, M., de Miguel-Díez, J., ... & Hurtado-Fuentes, Á. (2025). Current Evidence on the Usefulness of Potential Therapies in the Prevention of COPD Exacerbations: Beyond the Use of Bronchodilator Therapy and Inhaled Corticosteroids. Open Respiratory Archives, 7(2), 100438.",
@@ -291,6 +323,8 @@
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],
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"compensationType": "mixed",
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"resourceType": "registry",
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"entityCategory": "Commercial",
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"entitySubType": "Commercial",
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"citations": [
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{
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"title": "van der Laan, P., van Houdt, W. J., van Boven, H., Snaebjornsson, P., Bosch, L. J. W., Monkhorst, K., ... & van der Graaf, W. T. A. (2025). The role of whole-genome sequencing for guiding systemic therapy in patients with soft tissue sarcoma. ESMO open, 10(6), 105287.",
@@ -308,6 +342,8 @@
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],
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"compensationType": "mixed",
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"resourceType": "registry",
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"entityCategory": "Commercial",
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"entitySubType": "Commercial",
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"citations": [
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{
313349
"title": "De Corte, W., Delrue, H., Vanfleteren, L. J. J., Dutré, P. E. M., Pottel, H., Devriendt, D. K. J. C., ... & Desmet, M. B. (2012). Randomized clinical trial on the influence of anaesthesia protocol on intestinal motility during laparoscopic surgery requiring small bowel anastomosis. Journal of British Surgery, 99(11), 1524-1529.",
@@ -346,6 +382,8 @@
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"US"
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],
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"compensationType": "mixed",
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"entityCategory": "Government",
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"entitySubType": "Research Agency",
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"description": "A nonprofit program funded by the National Institutes of Health (NIH) that connects people interested in research studies with researchers from top medical centers across the U.S."
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},
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{
@@ -362,6 +400,8 @@
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"GB"
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],
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"compensationType": "payment",
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"entityCategory": "Commercial",
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"entitySubType": "Commercial",
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"description": "Conducts clinical trials for flu and common cold viruses in London and Manchester, compensating volunteers for their time.",
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"citations": [
367407
{
@@ -385,6 +425,8 @@
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"US"
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],
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"compensationType": "mixed",
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"entityCategory": "Academic",
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"entitySubType": "Academic",
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"description": "Connects community members in Florida with health research opportunities at the University of Florida."
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},
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{
@@ -400,7 +442,9 @@
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"countryCodes": [
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"US"
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],
403-
"compensationType": "payment"
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"compensationType": "payment",
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"entityCategory": "Commercial",
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"entitySubType": "Commercial"
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},
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{
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"id": "lifeblood-microbiome",
@@ -416,7 +460,9 @@
416460
"countryCodes": [
417461
"AU"
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],
419-
"compensationType": "donation"
463+
"compensationType": "donation",
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"entityCategory": "Non-Profit",
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"entitySubType": "Non-Profit Organization"
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},
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{
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"id": "wesley-stool-donation",
@@ -432,7 +478,9 @@
432478
"countryCodes": [
433479
"AU"
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],
435-
"compensationType": "donation"
481+
"compensationType": "donation",
482+
"entityCategory": "Non-Profit",
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"entitySubType": "Non-Profit Organization"
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},
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{
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"id": "wesley-placenta-donation",
@@ -448,7 +496,9 @@
448496
"countryCodes": [
449497
"AU"
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],
451-
"compensationType": "donation"
499+
"compensationType": "donation",
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"entityCategory": "Non-Profit",
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"entitySubType": "Non-Profit Organization"
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},
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{
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"id": "wroclaw-hair-decomposition",
@@ -465,6 +515,8 @@
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"PL"
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],
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"compensationType": "donation",
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"entityCategory": "Academic",
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"entitySubType": "Academic",
468520
"citations": [
469521
{
470522
"title": "Palacz, K., Cholewa, M., Bonar, M., Krzyżanowska, M., & Kadej, M. (2023). The rate and quality of post-mortem hair root changes in relation to melanin content. Forensic Science International, 350, 111784.",
@@ -484,7 +536,9 @@
484536
"dataTypes": [
485537
"Social media data"
486538
],
487-
"compensationType": "donation"
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"compensationType": "donation",
540+
"entityCategory": "Academic",
541+
"entitySubType": "Academic"
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},
489543
{
490544
"id": "penn-medicine-donate-your-data",
@@ -498,6 +552,8 @@
498552
"Search history"
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],
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"compensationType": "payment",
555+
"entityCategory": "Academic",
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"entitySubType": "Academic",
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"citations": [
502558
{
503559
"title": "J.C. Eichstaedt, R.J. Smith, R.M. Merchant, L.H. Ungar, P. Crutchley, D. Preoţiuc-Pietro, D.A. Asch, & H.A. Schwartz, Facebook language predicts depression in medical records, Proc. Natl. Acad. Sci. U.S.A. 115 (44) 11203-11208, (2018).",
@@ -524,6 +580,8 @@
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"GB"
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],
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"compensationType": "donation",
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"entityCategory": "Government",
584+
"entitySubType": "Regulatory Agency",
527585
"description": "Plain-language summaries of research studies approved by the NHS Health Research Authority."
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},
529587
{
@@ -536,6 +594,8 @@
536594
],
537595
"compensationType": "mixed",
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"resourceType": "database",
597+
"entityCategory": "Non-Profit",
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"entitySubType": "Research Collaborative",
539599
"description": "A highly concentrated source of reports of randomized and quasi-randomized controlled trials from various databases and other sources. Access requires a subscription to the Cochrane Library."
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},
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{
@@ -554,6 +614,8 @@
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],
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"compensationType": "mixed",
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"resourceType": "registry",
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"entityCategory": "Academic",
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"entitySubType": "Academic",
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"description": "The primary register for clinical trials conducted in Germany, providing public access to study information."
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},
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{
@@ -572,6 +634,55 @@
572634
],
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"compensationType": "mixed",
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"resourceType": "database",
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"entityCategory": "Government",
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"entitySubType": "Regulatory Agency",
575639
"description": "A listing of specific information relating to phase I, II, and III clinical trials in patients authorized by Health Canada."
640+
},
641+
{
642+
"id": "aatb-accredited-bank-search",
643+
"title": "AATB Accredited Bank Search",
644+
"organization": "American Association of Tissue Banks (AATB)",
645+
"link": "https://www.aatb.org/accredited-bank-search",
646+
"dataTypes": [
647+
"Tissue",
648+
"Body",
649+
"Organ",
650+
"Placenta",
651+
"Eggs",
652+
"Sperm",
653+
"Embryos"
654+
],
655+
"countries": [
656+
"United States"
657+
],
658+
"countryCodes": [
659+
"US"
660+
],
661+
"compensationType": "mixed",
662+
"resourceType": "Directory",
663+
"entityCategory": "Non-Profit",
664+
"entitySubType": "Professional Association",
665+
"description": "A search tool to find AATB-accredited tissue banks in the United States, covering various types of tissue, organ, and birth tissue donation."
666+
},
667+
{
668+
"id": "organdonor-gov",
669+
"title": "OrganDonor.gov",
670+
"organization": "U.S. Department of Health & Human Services",
671+
"link": "https://www.organdonor.gov/sign-up",
672+
"dataTypes": [
673+
"Organ",
674+
"Tissue"
675+
],
676+
"countries": [
677+
"United States"
678+
],
679+
"countryCodes": [
680+
"US"
681+
],
682+
"compensationType": "donation",
683+
"resourceType": "Donation Portal",
684+
"entityCategory": "Government",
685+
"entitySubType": "Public Health Service",
686+
"description": "The official U.S. government website for organ, eye, and tissue donation. Provides information and links to state registries to sign up as a donor."
576687
}
577688
]

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