Open Data 2.0 (Emergent session): Brain research data sharing and personal data privacy: continued discussion on anonymization + community meeting #93
Description
Brain research data sharing and personal data privacy: continued discussion on anonymization + community meeting
By Stephan Heunis, Emma Bluemke, Gustav Nilsonne, Tonya White, Peer Herholz, and more.
- Theme: Open Data 2.0
- Format: Emergent session
Abstract
We had a successful 1st emergent session on "Open neuroimaging data and personal data privacy: convergence or divergence" and there has been interest in extending the discussion for another session. We therefore propose a follow-up session to discuss a more specific topic (whereas the 1st session was more broad): anonymization of brain research data.
- What does anonymization mean?
- Where are the blurred boundaries between personal, pseudo-anonymous, and anonymous?
- What algorithms are out there to de-identify and re-identify brain research data?
- And what are the associated risks when depending on them?
We will also discuss the broader goal of setting up a community around the topic of brain research data sharing and personal data privacy, building on the momentum of the Open Brain Consent working group.
Useful Links
https://open-brain-consent.readthedocs.io/en/latest/index.html
Tagging @jsheunis @tjhwhite @lzehl @jopasserat @GNilsonne @agt24 @CPernet @PeerHerholz @yarikoptic @cassgvp @DorienHuijser @agt24 @eglerean @robertoostenveld